RARE DISEASES · A GROWING NETWORK

Fund Rare Disease Research While Earning Real Rewards

Every rare disease story starts with a family that refused to wait.
Turn your opinions into real support.

Are you a rare disease foundation? Join the network and turn your community's time online into funding. Free, forever.

The story behind this page

Meet Paxton.

Paxton Purdy was seven when he was diagnosed with a rare neurodegenerative mutation on the CLCN6 gene. His parents, Paul and Kristin, refused to wait: they founded Cure CLCN6 to support affected families and to fund the development of a gene therapy at UMass Chan Medical School's Horae Gene Therapy Center.

Today that work is approaching a clinical trial. This page exists so that anyone can back it, and the causes that will join next, with ten minutes of their time.

You can follow Paxton's journey on Instagram and Facebook.

Choose a cause

Use your time. Fund the research.

Choose a cause you care about. Every time you engage, you earn real rewards and your time creates real impact for that cause.

This page grows with the community: new causes are added as they join MadaiAid.

Join the network

Bring your rare disease community onto this page.

Foundations join free and get their official access link. Your supporters earn real rewards, and their time online becomes funding for your cause.